A&T
Adult Guinea Pig
Helloooo 
So I was actually reading through some comments from another thread and a few people mentioned having fibromyalgia.
Now I'm not normally one of these people who self diagnose, but I've been having a lot of hip problems and other problems which haven't been able to be diagnosed for around three years now.
I've always had intense leg pain ever since I was little, the doctors use to tell my mum to stop worrying it was growing pains, she never use to believe them but when she tried to argue they went with the over protective mother stuff. Anyway it use to keep me awake at night, it was horrible the only thing that would sort of work was a really hot flannel on my leg (knee particularly) it would just ache, like the worst cramp you've ever had, but it wasn't cramp. Anyway I still get that now, and when I was about 15 they sent me to have a shoe wedge fitted because apparently I had one leg bigger than the other and that was the problem all along... So I was given this wedge for my shoes but I never wore it, the leg pain didn't go away even when I did wear it.
Anyway, time went on I got on with my life, at this point I should mention I had a lot of mental problems growing up, anxiety, eating disorders etc. I was also bullied and didn't go to school because of this, which led to me not being able to go out alone and having panic attacks when I did go out.
I managed to get over this by counseling and went to college for 3 years until 2013 doing Animal Management, during doing my course I began getting this really bad pains in my hips, I mean... sometimes I couldn't even walk, it would just get stuck, or feel like it wasn't going to take any of my weight. I managed to complete my course, however my hips have got A LOT worse.. to the point where I cant say to someone oh yeah we'll do this because I don't know how my hips are going to be.
So the hips, I cant put my finger on anything that triggers it, I've tried exercising as far as I can see it makes it worse. Sometimes i get stuck in a certain position in bed where i cant move so either have to call out for my mum or just stay there. Its the worse pain I can imagine when its bad, it radiates in my hip and just...is like an ache with the occasional sharp pain if i move it in the wrong way which then shoots down my leg. At first it started in my right hip, then went to my left but the majority of the time its in the right.
I've had xray's that showed nothing, I've had MRI's that showed nothing, and ive had physio which just made things dramatically worse and gave me hip pain AND lower back pain. The physio even said yeah I don't think this is a case for us. Also, before i had physio i saw this guy who said i never had one leg bigger than the other and never needed a wedge for my shoe, so thank god I didn't wear it!
Anyway, while I was at physio he gave me a leaflet for fibromyalgia so I read thought it, and was horrified at how many symptoms I had but thought were none related...
I had bad women times, I have a thyroid problem but still can't really go a day without a nap or feeling extremely tired. People take the pee out of me because I always muddle my words or they dont come out right and I'm dyslexic. I have pain somewhere on my body everyday, I get a lot of headaches, I cant take pain things that wont be painful to other people are painful to me so much so my boyfriend sometimes says 'god its like you have brittle bone syndrome' because I literally say ouch to everything.
I've been back to the doctor who asked me if I got pain in my elbows which...is a strange thing to ask, but sometimes they really ache, I explain it as 'I can really feel my elbows today', anyway he's sent me for blood tests for rhemetoid factors, a full blood count and to look for some fluid that would be high if i had muscle or bone wastage.
On my way out he said 'This does sound like a mental anxiety thing though, and if it is, it will be a very long process to diagnose and a hard thing to prove', it didnt feel me with a lot of hope.
That was really long winded, thank you if you managed to get through it all! My question is, have you got fibromyalgia? if so, how did it first start? how was it diagnosed? and ultimately how do you cope?
I should also point out, I'm only 22.
So I was actually reading through some comments from another thread and a few people mentioned having fibromyalgia.
Now I'm not normally one of these people who self diagnose, but I've been having a lot of hip problems and other problems which haven't been able to be diagnosed for around three years now.
I've always had intense leg pain ever since I was little, the doctors use to tell my mum to stop worrying it was growing pains, she never use to believe them but when she tried to argue they went with the over protective mother stuff. Anyway it use to keep me awake at night, it was horrible the only thing that would sort of work was a really hot flannel on my leg (knee particularly) it would just ache, like the worst cramp you've ever had, but it wasn't cramp. Anyway I still get that now, and when I was about 15 they sent me to have a shoe wedge fitted because apparently I had one leg bigger than the other and that was the problem all along... So I was given this wedge for my shoes but I never wore it, the leg pain didn't go away even when I did wear it.
Anyway, time went on I got on with my life, at this point I should mention I had a lot of mental problems growing up, anxiety, eating disorders etc. I was also bullied and didn't go to school because of this, which led to me not being able to go out alone and having panic attacks when I did go out.
I managed to get over this by counseling and went to college for 3 years until 2013 doing Animal Management, during doing my course I began getting this really bad pains in my hips, I mean... sometimes I couldn't even walk, it would just get stuck, or feel like it wasn't going to take any of my weight. I managed to complete my course, however my hips have got A LOT worse.. to the point where I cant say to someone oh yeah we'll do this because I don't know how my hips are going to be.
So the hips, I cant put my finger on anything that triggers it, I've tried exercising as far as I can see it makes it worse. Sometimes i get stuck in a certain position in bed where i cant move so either have to call out for my mum or just stay there. Its the worse pain I can imagine when its bad, it radiates in my hip and just...is like an ache with the occasional sharp pain if i move it in the wrong way which then shoots down my leg. At first it started in my right hip, then went to my left but the majority of the time its in the right.
I've had xray's that showed nothing, I've had MRI's that showed nothing, and ive had physio which just made things dramatically worse and gave me hip pain AND lower back pain. The physio even said yeah I don't think this is a case for us. Also, before i had physio i saw this guy who said i never had one leg bigger than the other and never needed a wedge for my shoe, so thank god I didn't wear it!
Anyway, while I was at physio he gave me a leaflet for fibromyalgia so I read thought it, and was horrified at how many symptoms I had but thought were none related...
I had bad women times, I have a thyroid problem but still can't really go a day without a nap or feeling extremely tired. People take the pee out of me because I always muddle my words or they dont come out right and I'm dyslexic. I have pain somewhere on my body everyday, I get a lot of headaches, I cant take pain things that wont be painful to other people are painful to me so much so my boyfriend sometimes says 'god its like you have brittle bone syndrome' because I literally say ouch to everything.
I've been back to the doctor who asked me if I got pain in my elbows which...is a strange thing to ask, but sometimes they really ache, I explain it as 'I can really feel my elbows today', anyway he's sent me for blood tests for rhemetoid factors, a full blood count and to look for some fluid that would be high if i had muscle or bone wastage.
On my way out he said 'This does sound like a mental anxiety thing though, and if it is, it will be a very long process to diagnose and a hard thing to prove', it didnt feel me with a lot of hope.
That was really long winded, thank you if you managed to get through it all! My question is, have you got fibromyalgia? if so, how did it first start? how was it diagnosed? and ultimately how do you cope?
I should also point out, I'm only 22.
