Wiebke - Attendance during December 2025 - prolonged due to shingles

Thinking of you and wishing you strength and fortitude at this next stage of your journey.
 
How were you today Wiebke?
 
Thank you for all the good wishes. I have survived my first session. It was not necessarily what I expected but I can understand why you can get sick from the overstimulation you experience in the wake of a session - and that is getting stronger and longer with every day.

More details of my first session on my Wiebke's Journey thread: Wiebkes Journey.page-14
 
Wiebeke, you're just a awesome hooman and we really hold our little paws for you
❤️ Kongo and Harry

I'm so very thankful for all the fantastic advices and wisdom I got from you through these years and I'm so sorry you have to go through this nasty sickness. I'm holding you tight in my heart ❤️ /Lisa, forever owner of statue of "Forums most manipulated slave". Yes, my Boys LOVE you!
 
exia said:
Wiebeke, you're just a awesome hooman and we really hold our little paws for you
❤️ Kongo and Harry

I'm so very thankful for all the fantastic advices and wisdom I got from you through these years and I'm so sorry you have to go through this nasty sickness. I'm holding you tight in my heart ❤️ /Lisa, forever owner of statue of "Forums most manipulated slave". Yes, my Boys LOVE you!
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Thank you. I've now made it through my week's worth of radiotherapy sessions without coming fully down with hub's cold and more crucially without developing a cough.

At the moment, I am not really well but also not properly ill while the radiation is simmering away in my head. I am just generally tired, with a bit of a vague pressure headache, mild vertigo/balance issues ('wobbles'). My senses have still not fully settled down again after the overlad reaction after the first session. But I could be a lot worse.

The big exhaustion is going to hit me at some point but it is not there yet. I just take it easy but try to keep myself occupied and mentally balanced without taxing myself too much. With a little luck, I am going to be over the worst by Christmas. The average timing should just about work out.

Unlike with the big shock of my fall and broken hip ending me in hospital in late evening, this time we have had time to prepare and it is making all the difference. All the hard work of the last weeks is paying off now. :)

I am keeping my forum blog updated: Wiebke's Journey
 
Unfortunately, my weakened immune system after my radiotherapy treatment has allowed shingles a toe in of which I have been told by my doctor I present with a textbook case.

I am just coming out of the tip of the wave of exhaustion that hit me in the wake of my pretty intensive radiotherapy treatment I am not exactly in the best physical position to fight my shingles and I am finding them pretty debilitating. Between the radiotherapy and the shingles I am in any case looking forward to a prolonged recovery period that may take me well into next Spring.

I have to adjust my involvement with giving advice and support on this forum according to my day form, which is going to be somewhat haphazard.

Anyway, I want to thank all those of you have given me much needed support this year and the challenging last few weeks from the bottom of my heart. Unfortunately, I need more of it.

There goes the hope for finally having a normal Christmas with all the jingles and bells that hub so likes... :(
 
So sorry to hear this - what horrible timing for you. Rest up as much as you can and remember that we’re all thinking of you and behind you 100%.
 
How unfortunate for you- I hope that you can get some relief from them soon, and that you can still find some comfort this Christmas. :)
 
I'm so sorry that you have shingles to contend with on top of the side effects from your treatment. I hope that you will be well enough to participate in at least some of the festivities even though they may need to look different this year. As others have said rest as much as you can and take care of yourself.
 
I'm sorry you have shingles now on top of everything else. I'm hoping you'll have a speedy recovery from this and that you'd still have a good Christmas regardless. ❤️
 
I'm sorry you have shingles,its very itchy.You are an inspiration to all.you need as little stress as possible.i send big hugs,that you recover from the shingles soon.xx
 
eileen said:
I'm sorry you have shingles,its very itchy.You are an inspiration to all.you need as little stress as possible.i send big hugs,that you recover from the shingles soon.xx
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Thank you. I am working my way through it. So far, it is being really weak with pain on my left side but so far no itching - but I haven't reached the weeping pustules stage yet.
 
Really hope you recover from the shingles quickly. Shingles on top of everything! Sometimes it is the little things that help you get through the tough periods with illness. Take every little victory as something huge!
 
Wiebke said:
As many of you know, I have been diagnosed with stage 4 melanoma (without a cancerous skin spot - yes, that can happen) at the start of this year in the wake of breaking my hip due to an inoperable brain tumour when my leg suddenly just gave way under me.
The brain doesn't have any pain receptors, so falls or seizures and a very gradually increasing feeling of general grottiness with nowhere to put the finger on are a pretty common way of finding out that you have a brain tumour. Mine have been additionally masked by equally common somewhat indistinct Long Covid symptoms in the wake of a bad bout of Covid in 2022 while my cancer was already spreading through my body.

I have now recovered enough on my targeted immunotherapy (the newest generation of cancer meds) to tackle the next stage: concentrated radiotherapy on the cancer spots in my head over 5 consecutive days (Monday to Friday) next week.
I am going to be increasingly unwell and extremely tired with some other potentially more major side effects for the following 2-4 weeks and then still weaker and tiring more easily for another 3-4 months, which means that it is going to take me until next Spring to get back to how far I have come until now. It's not going to be a quick fix and the potential side effects on the brain and body can be at the worst permanent.

This in order to stabilise and hopefully shrink the inoperable cancer spots inside my head and to make them independent from my cancer meds, so that I don't have to worry whenever I have to come off my cancer meds and especially when they stop working sooner or later (nobody can say when) so we are not caught on the back foot at the other end.

However, your support has been invaluable for me over the last year and I will have rely on it rather heavily now for the frankly scariest part of my cancer journey. I may continue to come on here for a much needed moodboost and your community support but I won't be well enough to support others and give advice - and I will continue not do do it whenever and as long as I do not feel strong enough for helping others but need support and understanding for myself.

I hope that you can respect this and that this post can avoid awkward questions, comments and tags from members looking for answers for their own problems in the meantime.

I want to thank you all for all the support you have given me as individuals and as a community, but especially to @Qualcast&Flymo @furryfriends (TEAS) @BossHogg @Piggies&buns and to the whole modding team. You cannot imagine just how much your support has meant and is still meaning to me.

Please keep me in your thoughts and prayers for the coming weeks as the effects of the intense x-rays gradually build up and evolve.

Here is the ongoing blog of my journey so far over the past year. It's been quite a rollercoaster ride with lots of twists and turns, which is now about to take its scariest dive and bend. I will continue to update, depending on how fit I am: Wiebke's Journey

Thank you again for your understanding and support.
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I am just seeing this post, and must offer my deepest gratitude and wellest wishes to you during this most challenging journey you’re embarking on. I don’t know you…not even your real name…, yet I seek and trust your advice and wisdom in my most fragile of times. What a gift you have.

Sending you strength and grace while you overcome the most challenging obstacle ahead.
may your overwhelming positive deserved karma grant you health and wellness!
 
Hope it all goes well, theres a lot of support here
 
rlsf said:
I am just seeing this post, and must offer my deepest gratitude and wellest wishes to you during this most challenging journey you’re embarking on. I don’t know you…not even your real name…, yet I seek and trust your advice and wisdom in my most fragile of times. What a gift you have.

Sending you strength and grace while you overcome the most challenging obstacle ahead.
may your overwhelming positive deserved karma grant you health and wellness!
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Thank you so much.

Wiebke (pronounced something like Veebker) is actually my real first name. It is an old regional Friesian name that is still in use in Northern Germany and the Netherlands. :)

I have made it through my radiotherapy and am now sporting a very nice big forever pate on my head but unfortunately, the rather intensive course of radiation has weakened my immune system enough for me to come down with shingles just in time for Christmas so I am currently dealing with a double whammy of weakness and tiredness.
As far as I am concerned, this year can only get better... Starting with a trip to the hairdresser to get rid of my remaining hair once I am fit enough. :)

Anyway, I hope that you have had a good start and are having a good year for yourself.
 
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